Get a Manicure & Help Kids with Juvenile Arthritis! {And an Update on our Fundraising!}

Help us Find a Cure

Hello hello! Happy Saturday! I have a super awesome FUN way to help us in finding a CURE for Juvenile Arthritis AND have pretty nails That’s in just a bit…first an update on our fundraiser! Cure for Juvenile Arthritis Update As I write this post on Saturday morning, our fundraising grand total from the SLP Bundles is…… $2240!!! Can you BELIEVE in just 7 days we’ve raised over $2200!!?? That is A M A Z I N G!!! Thank you {Read More}

Help Us Find A Cure for Juvenile Arthritis {and score $125 of Materials for $20!}

Help us Find a Cure

If you are a long time reader, you probably already know that my daughter E suffers from an auto immune disorder called Juvenile Arthritis, or JA. She was diagnosed at the ripe old age of two, just after her birthday. (You can read her whole story HERE). Juvenile Arthritis (JA) is a chronic, life long auto immune disease with no cure. The body’s own immune system goes haywire and attacks the body’s healthy tissue within the joints (and sometimes in {Read More}

Living with Juvenile Arthritis: A Parent’s Guide {A Review and Chances to Win a Copy!}

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Last month I shared with you an update on my daughter’s juvenile arthritis. Her ninja-like immune system is back at it and we’ve started a new medication. So far so good! One of the reasons I write about my daughter’s illness is awareness. People tend to know very little about this disease that affects over 300,000 children in the US alone. And because of my posts on juvenile arthritis, I have gotten many emails from parents with a child who {Read More}

A little Inspiration for your Weekend

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A friend shared this video on Facebook yesterday and I just HAD to share it. Children (and staff) at Children’s Hospital at Dartmouth-Hitchcock, aka CHAD,  located in Lebanon, N.H., made their own inspiring version of Katy Perry’s hit ROAR. They made the video for its annual CHaD HERO Half Marathon & Ripcord 5K, according to their Facebook page. I personally thought of all the children I have worked with with various disabilities as I watched this video and how I have personally watched {Read More}

Our Life with Juvenile Arthritis: My Daughter’s Ninja

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I told you I wrote a post! Ha! Here it is…a little update on my daughter… As many of you know, my daughter has Juvenile Arthritis. She was diagnosed at the ripe old age of two, when I was VERY pregnant with Ev. You can read her story HERE. My KGAT awareness bracelet.  She has been through a few procedures, including a joint injection and an MRI, both under sedation. She has endured countless blood draws and doctors appointments and {Read More}

Arthritis Walk 2013: Support My Daughter and Children Like Her

The last two years (2011, 2012) we participated in our local Arthritis Walk to support our daughter who suffers from an Auto Immune disease that causes joint swelling and inflammation (among other things). Her disease can be very debilitating and yes, even DEADLY. In those two years, we raised about $28,000 dollars. You can read E’s story HERE. And you can watch this short movie I made in 2011 to help educate about JA. Or this one I made later {Read More}

Back at Day Zero {but Juvenile Arthritis STILL Sucks}

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Happy Monday! It’s been a bit busy around here. Last week my husband was out of town and I just got nothing done. I am very lucky that I have a husband that really steps up to the plate and helps out around the house so when he is gone things can get a little crazy. I just felt it a victory that the kids are clean (mostly) and fed and alive. Ha. But I did not get any blogging done at all {Read More}

Juvenile Arthritis Sucks

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I’ve been going through all the survey answers (thank you THANK YOU to those who took the time to fill it out!) and have been learning a lot. This survey is really going to help me plan future posts for you all and I’m super excited. I also have been so humbled by all the kind words you all left for me there. It means more than you know, particularly this week. I love hearing the topics you’d like me {Read More}

Review, Relief, Reflection, and the other “R” Word

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Review This last year and a half has been pretty crazy. I was like 52 weeks pregnant with Ev when E was diagnosed with Juvenile Arthritis. When Ev was 8 days old, Ell was put under to have a cortisone injection in her knee. Then the physical therapy began. A few months later she started taking injectable Methotrexate orally to try to reduce the inflammation in her right hand. Then the occupational therapy began. Soon we had to switch to {Read More}

Arthritis Walk 2012!

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It was a BUSY weekend….which is why this will be a quick post. We participated in our local Arthritis Walk on Saturday in honor of my daughter E who has Juvenile Arthritis. In fact, my daughter was the honoree for the walk. It was a FANTASTIC time…the event was amazing and the committee did an awesome job planning an implementing this event. I’m so pleased to announce that we ended up raising a total of… $10,840!!! I took a bunch {Read More}

Less Than Two Weeks Until the Arthritis Walk!

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I mentioned recently about our participation in the Arthritis Walk 2012 coming up on May 5th! My daughter E is the Juvenile Arthritis Hero, aka the youth honoree of the walk this year. At age two she was diagnosed with this terrible life-long auto immune disease that causes the body to attack its own joints and sometimes, the organs. We are helping raising funds to help hopefully find a CURE someday for this disease as well as better treatments and medications {Read More}

Join Us in Our Fight Against Juvenile Arthritis!

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I know that I usually post free stuff on my blog on Fridays. However today I am taking a break from making and sharing freebies to focus on something that is very important to me: Juvenile Arthritis. What is Juvenile Arthritis? Juvenile Arthritis is NOT the “arthritis” that most people think of when they hear that word. Juvenile Arthritis (aka Juvenile Idiopathic Arthritis or Juvenile Rheumatoid Arthritis) is an autoimmune disease that causes the body to attack its own joints. It {Read More}